Phoenix-based Feeding Matters approved for $240K to launch consortium
Special to Independent Newsmedia
Posted 2/29/24
Feeding Matters, a Phoenix-based nonprofit that is the first organization in the world serving kids with pediatric feeding disorder, has secured funding for the launch of the Family Centered Pediatric Feeding Disorder Research Consortium.
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Feeding Matters, a Phoenix-based nonprofit that serves kids with pediatric feeding disorder, has secured funding for the launch of the Family Centered Pediatric Feeding Disorder Research Consortium.
A Feeding Matters team in partnership with University of North Carolina Wilmington has been approved for a $241,000 funding award through the Eugene Washington PCORI Engagement Awards program, an initiative of the Patient-Centered Outcomes Research Institute.
Feeding Matters CEO Jaclyn Pederson will co-lead the engagement project with Hayley Estrem, associate professor at UNCW. Research on pediatric feeding disorder is still considered an emerging field and while there has been great progress in recent years on the advancement of research, it still lacks the inclusion of the patient and family voice, according to a press release.
Pediatric feeding disorder is impaired oral intake that is not age-appropriate and is associated with medical, nutritional, feeding skill, and/or psychosocial dysfunction.
For these infants and children, every bite of food can be painful, scary, or impossible, potentially impeding nutrition, development, growth, and overall well-being.
PFD affects more than one in 37 American children under the age of 5 annually, a prevalence that surpasses that of childhood conditions like cerebral palsy and autism.
The launch of the Family-Centered Research Consortium is part of a portfolio of projects that the Patient-Centered Outcomes Research Institute has funded to help develop a community of patients and other stakeholders equipped to participate as partners in comparative clinical effectiveness research.
The institute is a nonprofit authorized by Congress with a mission to fund patient-centered comparative clinical effectiveness research that provides patients, their caregivers and clinicians with the evidence-based information they need to make better informed health and health care decisions.
